Posts Tagged ‘altruistic donor’

Daisy chain of hope

Tuesday, December 22nd, 2009

By The Grand Rapids Press Editorial Board
December 22, 2009, 9:00AM

West Michigan is a place of givers, people who offer their time, experience, kindness and currency. They all deserve our thanks and praise for making this community better.

But once in a while, someone gives a gift so rare and consequential, it deserves to be held up and celebrated in a special light.

A selfless gesture by Grand Rapids firefighter Harry Damon reaches that extraordinary level. He donated his kidney to a perfect stranger this year, sparking what became a multi-state daisy chain of donations that ultimately saved 10 lives. Damon was recently honored by the National Kidney Registry, which has begun a national campaign to increase the number of live donor kidney transplants and save thousands of lives each year.

Kidney donation chains didn’t exist before 2007. That year, another Michigan resident, Petoskey’s Matt Jones, a young father, decided to donate his kidney to a stranger as a way to teach his children about selfless giving.

Mr. Jones’ powerful act set off what is considered to be the nation’s first and now longest-running open-ended kidney transplant chain. It has saved 20 lives and is still going. Mr. Jones, 30, and his chain of recipients and donors recently were featured in People Magazine’s 2009 “Heroes Among Us” issue.

Likewise, Mr. Damon’s altruism has been featured in The Press and many other publications nationwide.

In just two years, about 20 chains have been started, managed through the National Kidney Registry and the Toledo-based Alliance for Paired Donations.

Each chain starts with a so-called “altruistic donor,” and then survives on trust. There is nothing that legally compels the loved one of a recipient to continue the chain, but transplant doctors and advocates marvel at the strength and longevity of the chains, which have already helped well over 100 people.

The chain movement, adding to the “paired donations” registration efforts, is considered a promising way to reduce the growing number of people who die while waiting for kidney transplants.

More than 83,000 Americans are awaiting such transplants, and 12 people die each day because of a lack of donors. Total kidney donations, from both live and deceased donors, total about 17,000 yearly. Kidneys from living donors usually function for nearly 16 years, while a deceased donor kidney typically lasts about half that long.

Mr. Damon told The Press he started the chain to overcome a tragedy. He had spiraled into depression after his 21-year-old son, Nick, died in a 2003 snowmobile accident on the White Pine Trail.

He chose to do something powerful in Nick’s name as a way to reclaim his life and be there for his family. His kidney saved the life of Sheila Witney, a mom in California who had been on dialysis for more than six years. Her son’s kidney was incompatible for her, but he continued the chain by “paying it forward” to another recipient, and the chain stayed alive across several months and states, thanks to spouses and other relatives of recipients.

One family helped by a donation chain said it “opened a whole new doorway of hope.”
As Mr. Damon learned with his extraordinary gift, there’s no better door to open.

Niagara Falls Native receives kidney from a near stranger

Thursday, August 27th, 2009

http://www.niagara-gazette.com/features/local_story_235110456.html

A GIFT FOR SAVILLA: Niagara Falls Native receives kidney from a near stranger
By Michele DeLuca

To him it was just a kidney. To her, it was a life-saving offer from someone she hardly knew. It was such an outrageous gift that she could hardly even consider it. As she tells it, death already had begun to enter her body last year when she decided to accept a kidney from a man she had never met. Now his kidney is in her body, keeping her alive and saving her from hours of painful dialysis and illness.

Because of a 44-year-old man named Stephen McClelland, Niagara Falls native Savilla Kress can go back to her life in Vancouver, modeling, painting and designing clothes.

As for McClelland, to hear him tell it, it was really nothing.

“It’s not that big of a deal,” he said during a phone interview from Las Vegas where he is singing in a musical review at Bally’s.

The two had been conversing on a networking site for models when he learned that Kress needed a kidney. It seemed a coincidence when they learned they shared the same blood type — type O — making them a perfect match for organ exchange.

At that time Savilla, who now lives in Vancouver and also has been working as a costume designer for a variety of sci-fi television series including “Stargate,” “Dark Angel” and “Stargate Atlantis.”

Although she had been diagnosed with kidney disease when she was 21, she had been living a relatively healthy life until her kidneys began to fail a couple of years ago.

“I kept thinking I can beat this,” she said. “I also thought if it’s my time, it’s my time.”Still, she tried every option, including herbs from a Chinese doctor, but nothing worked and her kidney function dropped to about 15 percent.

“The strange thing about kidney failure is you don’t look sick,” she said. “I even had a modeling job when my kidney function was down to 9 percent. The pictures came out great.”

Her nephrologist was concerned she was in denial about the illness. He told her, “I don’t think you realize this, but you are going to die and it’s going to be in weeks.”

Then, pretty quickly, her body began to respond to the loss of kidney function. At 9 percent function, her skin started turning yellow, her ankles swelled and she began to have a hard time breathing. Her body was filling with toxins that are typically flushed out by the kidneys.

“I felt death enter my body,” she said.

Her boyfriend insisted she begin dialysis, but she hadn’t even told her family how sick she was. She knew her brother and sister would insist on testing to see if they could give her one of their kidneys. She simply didn’t want either of them to make that big of a sacrifice for her.

“In my mind, I thought I would rather die than take one of their kidneys,” she said. But then, Savilla saw her sister, Helen’s, heartbreak after they learned her kidney would not be a match for Savilla.

“She locked herself in the bathroom for 45 minutes and cried,” Savilla recalled. “She was devastated she couldn’t help me.

At the same time her brother Frank, in Maryland, was trying to get tested, but he was denied insurance to pay for the procedure. Then an area church held a fundraiser to pay for the tests, but Frank also was not a match for Savilla.

She began self-dialysis, a painful, involved process that forced her to hook up to machines all night long. She even posted video on YouTube where more than 4,000 viewers have watched the unglamorous and ungainly 10-minute procedure required when flushing one’s body with 17.5 liters of fluid each night.

It was when Savilla changed her profile on the modeling Web site, saying she couldn’t take on any new jobs because of her illness, that McClelland contacted her and offered his kidney.

“Somebody saved my life 20 years ago and I never got to thank them,” McClelland told her. He had been in a car accident and a stranger helped him escape from the wreckage but disappeared afterward. McClelland felt that giving his kidney to Savilla was a way to pay the good deed forward.

McClelland, who appears very low-key about the gift, also held a second memory of being saved. He was swimming in the ocean as a young man and was caught in a riptide. He remembers struggling until he could swim no more and then, just as he gave in to his fate, he remembers a hand pushing him out of the riptide and enabling him to save him own life. He believes that it may have been the help of an angel. But he doesn’t make a big deal out of that incident either.

He simply wanted to offer his kidney because, “if someone was burning in a fire or drowning in a lake, I would try to save them.” To him, Savilla’s case was exactly like that.

Pretty quickly Savilla’s family and friends set up a foundation called Savilla’s Hope, which was set up to raise money so that McClelland would have something to live on during the eight weeks he was off work. Friends responded generously. The operation occurred in January when Savilla and Stephen met face-to-face for the first time.

Even then, the gift he was giving her was almost too much for her to accept.

“I almost backed out but, at the time, I didn’t have any options” Savilla recalled. “He had to convince me. He had to do a lot of convincing.”

“It was so hard to accept a gift like that. I can’t even accept $5 from somebody,” she said recently during a visit with her mother, also named Savilla Kress, at her childhood home near Hyde Park.

With no options, Savilla accepted the gift. The operation in Vancouver went smoothly and was paid for by Savilla’s Canadian health insurance. The event was covered by many media outlets, including a segment on the national news, which was also posted on YouTube. Stephen, with his wife at his side, handled it all pretty easily. Savilla felt better immediately after the operation.

“You have no idea of how sick you are until you feel healthy,” she said. “Everything was working.”

There have been ups and downs since for Savilla. These include migraine headaches and stomach upsets while the anti-rejection drugs were adjusted. But, she’s feeling pretty well these days and has an uncanny taste for chocolate ice cream. “I never liked ice cream before. It’s his favorite thing.”

She is back to modeling again and even did a series of lingerie photos that show her scar. The photographer thought it was natural and beautiful.

And her mother looked back on the events that changed her daughter’s life, and was simply amazed at the kindness so many people showed to her family.

“So many happy things have happened,” as a result of the gift, her mother said. She recalled donations pouring in from neighbors and strangers, helping the family in too many ways to name.

Savilla’s experience seems to prove that many people will help others in any way they can, but stories like hers are becoming more common, according to a spokesperson for the National Kidney Foundation of Western New York.

Anne McCooey, the executive director, said that more people are getting proactive about donating and receiving kidneys and other organs through Internet connections.

A Web site has been created in Western New York so that those in need of a kidney can connect with those who might like to donate. The 3-year-old site is called kidneyconnection.org, McCooey said.

“We’ve already had our fifth successful match from it, which is huge,” she said. “Considering there are over 400 people in Western New York sitting on a waiting list and the average wait time for a donor is four to five years.”

McCooey added that while healthy people live quite well on only one kidney, the process to donate is so stringent that by the time a prospective donor gets through the physicals “you will know you are probably one of the best physical specimens walking around on the face of the Earth.”

McCooey also said people like Stephen McClelland are heroes, but McClelland won’t even consider wearing that title.

“I just have a new sister that I talk to all the time,” he said of Savilla. “That’s all.”

York woman donates kidney to Texas officer

Monday, August 3rd, 2009

KATHY STEVENS The York Dispatch
Updated: 07/31/2009 11:08:41 AM EDT

Shari Perkins holds a photo of her father, Marlin Knaub, outside her home. Perkins is donating her kidney to a police officer in Texas. (Doug Bauman photo)
They kept it quiet for weeks, never letting retired police Capt. M. Rene Lozano know what was headed his way.

But in recent days, Shari Perkins and co-conspirators Linda Mares and Kari Quinn let the cat out of the bag telling Lozano he would receive Perkins’ kidney.

Perkins’ kidney had passed muster, proved a perfect match for Lozano, a Houston resident whose Type 1 diabetes led to kidney failure.

He is one of about 55,000 people nationwide who await kidneys, according to the U.S. Department of Health and Human Services.

He and Perkins check in next month at Methodist Hospital Transplant Center in Houston for the donor and transplant surgeries. Perkins will spend a few days in the hospital and up to eight weeks recovering at her York Township home.

If Lozano’s body accepts the kidney, he will spend two weeks recovering in the hospital and will remain on anti-rejection medication for the rest of his life. If the 55-year-old’s body rejects the organ, he’ll be placed back on dialysis, and the national waiting list.

But his family says divine intervention is at work and they remain faithful the operation will prove successful. They’ll know next month when Perkins, a 45-year-old wife, mother and homemaker, heads to Houston for the surgery.

A Web meeting: She encountered Lozano via Quinn’s posting on “Wish Upon a Hero,” a Web site. Quinn posted the wish after doctors told her health issues would prevent her from donating.

Quinn wrote, “He is a wonderful man that has always done everything in his power to help others whether it be providing Christmas for a needy family or giving someone his last dollar to put a smile on their face.”

Within 30 minutes of posting May 16, Perkins responded saying she would help.

Perkins soon learned that Lozano was a 30-year police veteran whose health forced retirement from the Houston Police Department. Lozano was sick through no fault of his own. He’d managed the diabetes for decades, but the disease began to take its toll on his kidneys.

His 6-foot-2-inch frame has withered since doctors put him on dialysis about six months ago. He’s had several strokes in recent months and currently is in physical therapy, said Mares, Lozano’s fiance, from her home in Houston.

Perkins, Mares and Quinn decided to keep the possible match a secret. They didn’t want him to become hopeful only to be disappointed. So they remained quiet until doctors gave the go-ahead.

Dad was donor: The women let go the secret at a Houston steakhouse in July. Mares told Lozano that Perkins was a friend from Pennsylvania.

Perkins arrived at the restaurant and delivered a card containing one of her favorite stories, about a guy who retrieved beached starfish and returned them to the ocean with the goal to save just one.

Perkins has had the same goal since her father, Marlin Perkins, died unexpectedly in 1995 of a heart attack. He was an organ donor, and inspired her to become a living donor.

Perkins told Lozano at dinner that night that she had a kidney for him if he would do her the honor of accepting, Mares said. He was quiet, thumbed through a menu to find words.

He looked at Perkins, then told her that he would hug her and jump for joy, if he could.

“I didn’t believe there were people like that in the world,” Lozano said Tuesday, speaking via telephone from his parents’ home in Houston. “She is willing to give a part of herself so I can live.”

He says he is one of the lucky ones, that there are other dialysis patients nearing death who have waited years for a kidney. Living donors decrease the wait, currently providing about one-third of about 14,000 kidneys each year.

“I call (Perkins) my guardian angel,” he said. “That’s exactly what she is.”

Doctors have assembled the surgery team for the hours-long procedure Aug. 25 .

“I don’t want accolades, I just hope our story will inspire one person to become a living donor,” Perkins said. “If that happens, then I’ve accomplished something.”

– Reach Kathy Stevens at 505-5437 or kstevens@yorkdis patch.com.

Kidney disease facts
—About 26 million American adults have chronic kidney disease

—Early detection can help prevent the progression of kidney disease to kidney failure.

—Heart disease is the major cause of death for all people with chronic kidney disease.

—High blood pressure causes chronic kidney disease, and chronic kidney disease causes high blood pressure.

—Those most at risk of kidney disease include people with diabetes, high blood pressure and family history.

—African Americans, Hispanics, Pacific Islanders, Native Americans and the elderly are at increased risk.

—Three simple tests can detect chronic kidney disease: blood pressure, urine albumin and serum creatinine.

—About 14,000 kidney transplants are performed annually; one-third of those organs come from living donors.

—About 55,000 people are listed at any given time on the national registry for kidney transplant.

—More than 3,000 die annually while awaiting kidney transplant.

—The one-year survival rate for transplant recipients is about 95 percent.

Source: The National Kidney Foundation and the U.S. Depart ment of Health and Human Serv ices. Learn more about kidney disease online at www.kidney.org.

Woman’s illness spawns donation

Sunday, July 26th, 2009

The Anapolis
By SHANTEE WOODARDS, Staff Writer
Published 07/20/09

Laurie Sears Deppa had every intention of undergoing surgery to help an Edgewater woman in poor health.

Laurie Sears Deppa, who lives in Annapolis, decided to become part of Johns Hopkins Hospital’s paired kidney exchange program, which links previously incompatible donors to patients in need.

But after months of testing, the she learned that her kidney would not be a match for Jenny Cisneros, the 24-year-old whose health troubles have been documented in The Capital.

So Deppa, who lives in Annapolis, decided to become part of Johns Hopkins Hospital’s paired kidney exchange program, which links previously incompatible donors to patients in need.

Deppa had surgery last month, and one of her kidneys was donated to a West Virginia woman she’d never met. Deppa is still recovering from the procedure, but is pleased she made a difference for someone, if not for Cisneros.

Once she has fully healed, she plans to pick up her regular exercise regimen and eventually announce her plans to run for mayor of Annapolis.

“I thought I’d have a good kidney. I don’t drink or smoke and I’m pretty healthy,” Deppa said. “Some people think I’m crazy … (but) I just thought I’d help somebody, and what’s more important than giving the gift of someone’s life?”

Nationally, there are more than 300,000 people on the waiting list for a kidney transplant, according to the U.S. Department of Health and Human Services. In Maryland, 9,209 people are on the list, including 259 who have been added this year.

There are nearly 210,000 kidney donors available nationwide through the Organ Procurement and Transplantation Network, and that total includes about 4,300 in Maryland.

Cisneros is still awaiting a kidney, despite coming close to receiving a transplant at least three times before. Last year, a donor was found, but became ill and the transplant was later ruled out. This time, at least two candidates – including Deppa – went through a series of tests only to be ruled out as donors in the end. Her antibodies have been the problem, and now she’s in Minnesota to see if doctors at the Mayo Clinic can help.

“I was so frustrated because all these people called in to get tested and none of them were a match,” said Cisneros, 24. “‘I was like, ‘what’s the problem?’ and they said ‘it’s your antibodies.’ So I Googled how to get rid of them and the Mayo Clinic came up.”

Cisneros’ troubles with her kidneys began in 2003, when she thought she had a touch of the flu. But her doctor ordered a full round of tests and she was eventually diagnosed with Goodpasture’s syndrome, a disorder that weakens the kidneys and lungs. She was told that the disease would run its course through her body and not return.

After a treatment course of chemotherapy and steroids, Cisneros received her mother’s kidney. But that too began to fail, and she also developed congestive heart failure and hypertension.

The Capital published a story about her health challenges in January. At that time, she was fully dependent on dialysis treatment, which is still the case.

“She’ll act like everything is OK, like everything is fine and dandy, but it’s really not,” said Michelle Collett, a friend. “She’s such a tiny little thing, and she’d like everyone to think that she’s the strongest thing out there, but this has got to take a toll on the body. I don’t know how many more years she can handle it.”

Her friends set up a Web site, www.savejenny.com, and used billboards in the area to encourage people to get tested.

Potential donors get a blood test and urine test. If both are matches for someone who needs a kidney, they move on to a CT scan.

Deppa completed her rounds of testing, which included an X-ray, CT scan and blood work, in addition to the initial tests. She took a trip to Europe and believed she’d come back in time for Cisneros’ transplant surgery. Instead, she learned that the donation couldn’t move forward because there was a concern about Cisneros’ antibodies.

But the experience has helped turn Deppa into an advocate for organ donation.

“The sad truth is that there are a lot of people out there who believe that if they become a donor … medical personnel do not do everything they can to save their life; they’d rather harvest the kidney. We know that’s ludicrous, Deppa said. “Maybe this will have good karma. I helped one person and maybe, in response, others will do the same.”

For more information, visit www.savejenny.com. To be tested, call Athalene at Johns Hopkins Hospital at 410-614-6604.

What if someone you barely knew offered you one of their organs?

Thursday, July 23rd, 2009

By Glenn Wallace/Staff Writer/gwallace@santamariatimes.com

Lori Caldwell donated a kidney to Jerry Glover, of Ventura June 24 at the UCLA Medical Center. Caldwell was out of the hospital in three days. The donation happened about a year after the two met at the funeral of Glover’s father.

Bryan Walton/Staff
What if someone you barely knew offered you one of their organs?

That is just what happened, when Jerry Glover of Ventura received a donated kidney from Lompoc’s Lori Caldwell last month.

“Made my life just a hundred percent better,” Glover said, describing how the donation freed him from endless, draining dialysis treatments.

“It’s not as big a thing as it sounds like. The surgery was nothing,” Caldwell, 47, said, downplaying her actions.

Since the kidney transplant surgery June 24 at the UCLA Medical Center, Caldwell said, she has completely recovered, and enjoys the same kidney function she did with two.

“It’s amazing we have two kidneys when you can function just fine with one,” Caldwell said, describing the surgery — four laproscopic incisions less than an inch long, and one three-inch cut along the lower abdomen where the kidney is removed. She was out of the hospital in three days, and refers to it as the easiest surgery of her life.

The donation happened about a year after the two met and began talking at the funeral of Glover’s father, who was also named Jerry.

“I was real close to his dad,” Caldwell said. “Big Jerry talked about his son so much, I felt like I knew him all these years.”

In a way, she really had. Caldwell said a baby sitter for her daughter actually dated Glover. “So it actually goes back 25 years.”

When his own kidneys stopped working in 2006, the 46-year-old Glover began dialysis treatment.

Though dialysis will remove water and some toxins from the blood, it is not a perfect solution, and leaves patients exhausted after each treatment, which must be done, on average, every two to three days.

Glover said he got on the kidney transplant list, but the wait was estimated to be seven years or longer.

“By then, some patients can become so sick that they’re not good candidates for surgery anymore,” Caldwell said.

She would know, having worked as a bus driver for medical patients to and from dialysis treatment years earlier.

After hearing about Glover’s situation, and realizing they shared a blood type, Caldwell told him she would be interested in looking into donating a kidney for him.

Glover said he was tentative at first about the offer.

“You don’t want to push anybody. If they have any doubt in their mind, you don’t want them to do it.”

“But I called her later, got to know her, and she was serious,” Glover said.

For a year, Caldwell and Glover took a series of tests to confirm that her kidney would have a good chance of being compatible with Glover, that she could live without complication with only one kidney, and that both individuals could handle the strain of the surgery.

Months went by, but the doctors finally announced that everything looked fine to proceed.

That day, Caldwell said, she did feel some nerves about the donation, but she felt calmer as the surgery date approached.

With the help and support of her mother, aunt and best friend, Caldwell said, they made the drive down to UCLA, and had the surgery.

Glover is currently taking heavy doses of anti-rejection drugs, and has yet to return to work, but says he already feels immensely better, and has kept in touch with Caldwell, the two of them calling every other day.

“Obviously now we have a pretty good friendship,” Glover said. “I’m sure we’ll be friends forever now.”

Caldwell is not the only Lompoc woman to generously give an organ to a friend in need. In February, a similar story occurred between two Lompoc residents, Rachel Viramontes and John Ruckman.

Viramontes, 29, and her husband met Ruckman and his wife Carri through co-workers, and two couples became close friends.

“We just started hanging out — game night, watching ‘24’ once a week, regular potlucks,” Viramontes said.

Then the news came that John Ruckman’s kidneys were failing due to a hereditary disease.

To save money for the medical costs, the Ruckmans moved into the basement unit of the Viramontes’ house. Within a few months, the 30-year-old Ruckman had to go on dialysis.

Meanwhile, initial tests showed that Viramontes was an excellent donation candidate.

“I read all the information, I talked to my doctor, and I talked to my family,” Viramontes said.

Viramontes, who now lives in Concord, Calif., also said it was easier than she thought to give a kidney.

“You just have to be willing to help,” Viramontes said. “It was nice to help out a friend.”

July 21, 2009