Archive for February, 2010

Number of new organ donors doesn’t keep pace with need

Saturday, February 20th, 2010

Green Bay Press Gazzette

February 14, 2010

In the summer of 2008, Tanya Conrad sent an e-mail to about 50 relatives and close friends, asking if anyone could do her a favor: give up a kidney.

“It is very hard for me to ask you guys this,” she wrote. “But I am in need of help.”

Nearly two years later, Conrad, 36, of Abrams, has joined 1,500 other Wisconsin residents on a transplant waiting list that organ donation advocates wish did not even exist.

About 46,000 people in the state die every year, providing more than enough kidneys, hearts, livers and other organs for everyone who needs a transplant. However, not enough are donors to fulfill the need.

For Conrad, who was diagnosed with kidney disease 10 years ago, that means a life of agonizing uncertainty, with no assurance that a donor will be found before her health deteriorates even further.

“There’s nothing I can do about it,” she said. “That’s what is frustrating about it. I can’t do anything to help myself.”

To promote organ donation, a number of health organizations and others have designated today as National Donor Day — an occasion for people to consider organ, tissue or blood donation.

In Wisconsin, proponents hope to see a significant increase in donations starting in April, when Wisconsin launches a new online organ donation registry.

Rather than waiting to declare themselves organ donors when their driver’s licenses come up for renewal, people will be able to register online. Wisconsin is one of the last states in the country to provide such an online service.

Trey Schwab, outreach coordinator for the University of Wisconsin Hospital Organ Procurement Organization, said he hopes the registry will boost donations statewide from the current 54 percent of all residents aged 16 or older to more than 70 percent — the level in Oklahoma and other leading states.

Anthony Atala on growing new organs

Saturday, February 20th, 2010

See webinar link below:

copy and paste to your browser -
http://www.ted.com/talks/anthony_atala_growing_organs_engineering_tissue.html

Very interesting!!!

Study highlights need for more kidney donations

Sunday, February 14th, 2010

Surgeons operate to extract the liver and kidneys from a woman at the Unfallkrankenhaus Berlin hospital in Berlin, Germany.

LONDON (Reuters) – Kidney transplants from living donors have surged worldwide over the past decade, researchers said Wednesday, adding more organs are still needed from people who have just died.

They estimated 27,000 transplants take place every year from living donors — representing 39 percent of all kidney transplants — with majority in the United States, Brazil, Iran, Mexico and Japan.

“Our study shows that living donor kidney transplant rates have steadily risen in most regions of the world increasing its global significance as a treatment option for kidney failure,” the researchers wrote in Nature’s journal, Kidney International.

Better understanding of these global rates is important as severe kidney disease requiring transplants rises worldwide due to aging populations and unhealthy diets leading to diabetes and other conditions, they said.

Researcher Lucy Horvat and her colleagues at the University of Western Ontario in Canada said understanding who donates and why in different countries can help officials find ways to increase kidney and other organ donations.

“This is the first comprehensive report of its kind and it emphasizes the growing significance of living kidney donation worldwide,” Horvat said in a telephone interview.

A kidney transplant can get a person off dialysis and back to a normal life but the shortage of deceased donors pushes more people to seek an organ donation from a friend or relative, Horvat said.

Her team analyzed data from health registries, transplant networks, published studies and national health ministries in 69 countries.

They estimated the number of living kidney donor transplants grew over the last decade, with more than half of the countries reporting at least a 50 percent increase.

The researchers said Saudi Arabia ranked highest in the world for its living kidney donation rates, with most donors unrelated to the recipients.

Iran came in third and has no waiting list, likely due to a controversial system under which patients can pay for donated kidneys.

The researchers only reported legal living donations and said the overall number is likely higher.

The World Health Organization estimates about 10 percent of all organ transplants worldwide involve unacceptable or illegal transplants.

Handler Wade Koistinen gives kidney to ailing show dog owner, Sandy McCabe

Sunday, February 14th, 2010

BY Erica Pearson
DAILY NEWS STAFF WRITER

Saturday, February 13th 2010, 4:00 AM
Dog handler Wade Koistinen holds a Havanese named Rumor with the woman whose life he saved by giving her one of his kidneys, Sandy McCabe.
Watts/News
Dog handler Wade Koistinen holds a Havanese named Rumor with the woman whose life he saved by giving her one of his kidneys, Sandy McCabe.

Sandy McCabe would love for dog handler Wade Koistinen to lead her fluffy black-and-white Havanese to victory in Madison Square Garden.

But for McCabe, even a Best in Show at the Westminster Kennel Club show would pale next to what Koistinen has already given her – one of his kidneys.

“I’m just happy to be alive for this,” McCabe said Friday at the Pennsylvania Hotel, surrounded by borzois, bloodhounds and scores of other dogs and owners, all checking in before the show begins on Monday.

McCabe, 49, who breeds Havanese with her husband, Kevin, in rural Iowa, has diabetes and was facing renal failure last summer before her friend Koistinen told her he would help.

“I could just see her getting sicker and sicker. I had to,” said Koistinen, 51, holding McCabe’s entry in the show, Rumor, an outgoing little 4-year-old whose full name is Ch. Heartland’s Rumor Has It.

“I couldn’t walk more than 10 feet,” said McCabe, who was told that it would be four to six years before she climbed to the top of a national waiting list for kidneys. None of her family members was healthy enough to donate one.

But Koistinen, who lives in Kansas City, volunteered. “He stepped forward and said, ‘I will give my kidney,’” McCabe said.

The pair underwent tests at Minnesota’s Mayo Clinic last summer and found out that Koistinen was a perfect match. He persuaded doctors to do the transplant within a week.

Koistinen, who will first take to the ring with Rumor on Monday afternoon, seems modest about what he did. He lets McCabe do much of the talking, but proudly wears a green organ-donor wristband. McCabe had one too, until it had a run-in with one of her pups.

“My dogs chewed it,” she laughed.

epearson@nydailynews.com

Number of new donors doesn’t keep pace with those needing organs

Sunday, February 14th, 2010

February 14, 2010

In the summer of 2008, Tanya Conrad sent an e-mail to about 50 relatives and close friends, asking if anyone could do her a favor: give up a kidney.

“It is very hard for me to ask you guys this,” she wrote. “But I am in need of help.”

Nearly two years later, Conrad, 36, of Abrams, has joined 1,500 other Wisconsin residents on a transplant waiting list that organ donation advocates wish did not even exist.

About 3,000 people in the state die every year, providing more than enough kidneys, hearts, livers and other organs for everyone who needs a transplant. However, not enough are donors to fulfill the need.

For Conrad, who was diagnosed with kidney disease 10 years ago, that means a life of agonizing uncertainty, with no assurance that a donor will be found before her health deteriorates even further.

“There’s nothing I can do about it,” she said. “That’s what is frustrating about it. I can’t do anything to help myself.”

To promote organ donation, a number of health organizations and others have designated today as National Donor Day — an occasion for people to consider organ, tissue or blood donation.

In Wisconsin, proponents hope to see a significant increase in donations starting in April, when Wisconsin launches a new online organ donation registry.

Rather than waiting to declare themselves organ donors when their driver’s licenses come up for renewal, people will be able to register online. Wisconsin is one of the last states in the country to provide such an online service.

Trey Schwab, outreach coordinator for the University of Wisconsin Hospital Organ Procurement Organization, said he hopes the registry will boost donations statewide from the current 54 percent of all residents aged 16 or older to more than 70 percent — the level in Oklahoma and other leading states.

“That’ll be a big step,” he said of the registry.

The waiting list for an organ has remained fairly steady in Wisconsin at 1,500 people, Schwab said. Depending on the type of organ, the average wait is two to three years.

Life-saving kidney is gift from stranger

Monday, February 8th, 2010

By Carrie Whitaker • cwhitaker@enquirer.com • February 8, 2010
Last year Annie Laib was in a lot of pain. The 33-year-old doctor’s kidneys were failing and no one in her extended family, not even one of her 25 cousins, was a match for a transplant.

Annie’s twin sister, Emily, received a kidney from their cousin – the girl’s only healthy familial match – a year before and was doing well. Doctors told their family there was a 50/50 chance the kidney would last for 20 years.

The women have polycystic kidney disease, a genetic condition. Their father, grandmother and uncle have it as well but their cases are far milder than the twins’.

“Here’s poor Annie, facing a few years of dialysis and possibly her kidneys wouldn’t do so well,” said University Hospital transplant surgeon Dr. Steven Woodle.

Annie, of Newport, worried she wouldn’t get the same lease on life. But she hadn’t yet met Amy Maliborski.

Sitting in University Hospital on Friday with a new, healthy kidney inside of her, Annie Laib wept, letting loose the fear and anticipation she’d held onto for so long.

Then, happy tears, as she met her donor, a 36-year-old mother of three who heard about Annie’s plea and in a split second thought, “I could do that.”

“It’s a miracle,” said Annie’s dad, Richard, standing over the two, Annie at the edge of her hospital bed and Amy next to her in a wheelchair, grasping hands.

“Your kidney is so energetic,” Annie told Amy. “I haven’t felt this good in years.”
Amy’s story

Amy Maliborski was out of town when the plea for a donor was printed in the church bulletin at Our Lady of Lourdes Catholic Church in Westwood, the neighborhood where she lives.

She happened to think to read it online.

Coming across Annie’s name, Amy learned that this stranger was in the end stages of renal disease and needed a kidney. People with type O blood can wait four years to find a match, Woodle said.

Amy decided to call.

“I was just really at peace with it,” she said. “I thought, when else in your life do you have the opportunity to make such a big difference?”

She shared the idea with her husband, Craig, who admittedly wasn’t as gung-ho. But the assistant principal at St. Xavier High School couldn’t say no to his wife’s brave spirit.

Amy’s mother, Mary Lou Blount, was supportive and also bit her tongue.

“I was very concerned for her,” Blount said. “I knew she had to go through all this fear and courage at the same time, which I think is a very difficult thing to do.”

Amy was tested and found that she was a perfect match for Annie.

“I wasn’t afraid of the pain. I wasn’t afraid of dying,” Amy said. “But it was hard knowing if something went wrong, it was my choice.”

On Thursday she went in for surgery, refusing some medications so she could “see Craig’s face until the very last second.”

“They wheeled me back and they said, can you just hop up onto the operating table, so I did.”
Living donors

Although Woodle believes modern medicine has improved survival rates for today’s transplant donors, the reported risk of death is one in 5,000.

University Hospital prefers living donors transplants because the kidney can lasts an average of 20 years, compared to a deceased donor’s kidney, which on average lasts 10 to 11 years, Woodle said.

Forty-five percent of all kidney transplants in the United States today involve living donors. University Hospital has edged up its percentage to 64 percent, Woodle said.

“It adds years of life expectancy,” Woodle said. “That kidney will get (Annie) into middle age of life with one transplant.”

A subsequent transplant can be more difficult, making the first transplant critical, Woodle said.

According to the national Scientific Registry of Transplant Recipients, from July 2006 until January 2009 University Hospital completed 82 living donor transplants with a 100 percent survival rate after a year, 7 percentage points higher than the national average.
Going home

On the day after their surgeries, Amy Maliborski decided she wanted to meet the woman who received her organ. Annie Laib had hoped this would be the case.

The women’s mothers recognized each other. Kathleen Laib and Blount had worked together in years past as Realtors at Coldwell Banker on the West Side.

“Did you know it was us?” Kathleen Laib asked. Blount nodded her head “yes.”

Amy Maliborski was home on Saturday, about 48 hours after surgery. She’ll require a checkup in a week and should see her doctor once a year to check her kidney function and blood pressure, Woodle said. Living with one kidney gives her no better chance of kidney failure, because the things that cause kidney failure would affect both kidneys, Woodle said.

Annie will take a little more recovery time in the hospital, where they will monitor how her body receives its new organ.

The transplant means the girls are technically no longer living with polycystic kidney disease.

“It’s gone,” Annie said with a smile. “It’s too wonderful for words. She saved my life.”

Study highlights need for more kidney donations

Sunday, February 7th, 2010

LONDON (Reuters) – Kidney transplants from living donors have surged worldwide over the past decade, researchers said Wednesday, adding more organs are still needed from people who have just died.

They estimated 27,000 transplants take place every year from living donors — representing 39 percent of all kidney transplants — with majority in the United States, Brazil, Iran, Mexico and Japan.

“Our study shows that living donor kidney transplant rates have steadily risen in most regions of the world increasing its global significance as a treatment option for kidney failure,” the researchers wrote in Nature’s journal, Kidney International.

Better understanding of these global rates is important as severe kidney disease requiring transplants rises worldwide due to aging populations and unhealthy diets leading to diabetes and other conditions, they said.

Researcher Lucy Horvat and her colleagues at the University of Western Ontario in Canada said understanding who donates and why in different countries can help officials find ways to increase kidney and other organ donations.

“This is the first comprehensive report of its kind and it emphasizes the growing significance of living kidney donation worldwide,” Horvat said in a telephone interview.

A kidney transplant can get a person off dialysis and back to a normal life but the shortage of deceased donors pushes more people to seek an organ donation from a friend or relative, Horvat said.

Her team analyzed data from health registries, transplant networks, published studies and national health ministries in 69 countries.

They estimated the number of living kidney donor transplants grew over the last decade, with more than half of the countries reporting at least a 50 percent increase.

The researchers said Saudi Arabia ranked highest in the world for its living kidney donation rates, with most donors unrelated to the recipients.

Iran came in third and has no waiting list, likely due to a controversial system under which patients can pay for donated kidneys.

The researchers only reported legal living donations and said the overall number is likely higher.

The World Health Organization estimates about 10 percent of all organ transplants worldwide involve unacceptable or illegal transplants.

(Reporting by Michael Kahn; Editing by Maggie Fox and Sophie Hares)

40 Years Later: Kidney recipient, donor family meet

Sunday, February 7th, 2010

SAINT PAUL, Minn. — When most people receive a gift, they can say thank you right away. But an Inver Grove Heights man had been waiting more than four decades to express his gratitude. And he finally got that chance.

On this first Saturday in February, kidney recipient Steve Erickson walked into the Downtowner Woodfire Grill in Saint Paul and immediately hugged Mary Zilka. He said, “I’ve been waiting to give you a hug for 43 years.”

Zilka, of Bloomington, is the sister of Erickson’s kidney donor.

Erickson was just 19-years old when he got a kidney transplant at the University of Minnesota back in 1966 at a time when transplants were still pretty new.

He said, “I had an 80% chance of not making it out of the operating room.”

But that kidney lasted 40 years.

It came from Zilka’s brother, Tom Zentgraf of Bloomington. Zentgraf was 29 when he died after having surgery for a congenital heart defect. His family donated his organs.

Zilka said, “You always wonder what happened… How did the transplants work out?”

Until now, neither Zentgraf’s family nor Erickson knew who each other were.

Still Zilka said of donating a loved-one’s organs, “I think it helps with the grief. You feel much better. You know that out of the sadness something happy will happen. And then to find out it was this happy.”

Erickson shared with them how wonderful his life as been over the past 43 years. Zentgraf’s kidney allowed Erickson to marry his high school sweetheart, Patty, and live a good life, raising two daughters.

Zentgraf’s other surviving sister, Trish Stefanson of St. Paul, was at the meeting too, sharing photos of her brother with Erickson.

Erickson’s sister, Susie Biastock of Eagan, came too. She also gave him a kidney in 2006, after the kidney from Zentgraf finally wore out. Still, Zentgraf’s kidney lasted twice as long as the kidney Erickson was born with. And both families now urge others to become organ donors.

LifeSource, a non-profit organ and tissue donation organization, helped connect the two families. And this is the farthest it has gone back into records to make such a connection.

Jill Halimi of LifeSource said, “Another family I had worked with was from 1979 so this was much earlier obviously.”

Records at the U of M mentioned the name of Zilka’s husband and that was enough to match the families up again so they could meet face to face and say thank you for the very first time.

Erickson said, “I think we have a friendship that should last for a long time.”

Customer donating kidney to grocery store clerk

Sunday, February 7th, 2010

By Julie Deardorff, Tribune reporter

February 7, 2010

Dan Coyne had the surprise all planned out: Near the end of Myra dela Vega’s Friday night shift as a cashier at Jewel-Osco in Evanston, his children would buy some groceries and hand her a card. Inside would be the unexpected news that Coyne could donate one of his kidneys to dela Vega, who is suffering from renal failure.

But dela Vega, 49, who looked puzzled by the card, didn’t open it. Instead, Coyne emerged from hiding and blurted out the news himself.

“Oh! Oh!” dela Vega said, covering her mouth as her knees started to buckle. Her eyes filled with tears. Later, she explained: “It’s just so overwhelming to think someone is giving you an organ.”

Nearly half of all the transplants in the U.S. are from living donors. Some are related by blood; others donate to a general pool; some, like Coyne, simply have an emotional connection with the recipient.

Currently, more than 105,596 people are waiting for an organ, according to the United Network for Organ Sharing registry. In Illinois, more than 4,600 people need transplants. Living donors, who are increasing in number every year, can lessen the gap.

Kidneys are the organ most commonly involved in living-donor transplants, because the body can function normally with only one of the fist-size organs.

The average wait for a kidney from a deceased donor in the Chicago region is about five years, said Dr. John Friedewald, a transplant nephrologist at Northwestern Memorial Hospital, where dela Vega will have her operation March 26. Dela Vega had been waiting more than a year.

Half of living-donor kidneys transplanted now will still function in 25 years, whereas half of kidneys from deceased donors fail in the first 10 years, Friedewald said. Patients also experience significantly less pain, a shorter hospital stay and can return to normal life much faster.

Coyne, an elementary school social worker, met dela Vega two years ago while grocery shopping. They struck up a friendship, and when he learned she was starting dialysis for kidney failure, he asked whether she would consider him as a donor.

Dela Vega, an Evanston single mom of two teenage children, had hoped her sister, who was coming in from the Philippines, could donate. When they learned she couldn’t, Coyne repeated his offer. Last Wednesday, he was notified his blood and tissues were a match.

Initially Coyne’s wife, Emily, had reservations about her husband’s gift. But after seeing how much he wanted to do it, she relented. “I just hope he’s OK with one,” said Emily, a nurse.

Though any surgical procedure carries risk, studies have shown that donors’ remaining kidney continues to function normally and will compensate for the loss. “The key is that the donor is in good health beforehand,” said Friedewald.

“Life expectancy is about the same and there’s no increased risk of kidney disease for the donor,” he added.

Coyne doesn’t seem worried. His decision, he said, is a way to teach his children there are many ways to give.

“If you think how tenuous and difficult life can be for people around the world, it’s nothing,” said Coyne, referring to the earthquake in Haiti. “There is a risk of death, but the drive I make to work is riskier than the procedure.”

The diminutive and spirited dela Vega, meanwhile, has already told Jewel-Osco store manager Paul Olson her future plans.

“On March 26, I’m on vacation,” she yelled across the store after finally opening Coyne’s handwritten invitation to Northwestern’s Kovler Organ Transplantation Center. “Whether you like it or not!”

jdeardorff@tribune.com

2010, Chicago Tribune

Sisters tout need for more organ donations

Sunday, February 7th, 2010

By Kevin Haas
RRSTAR.COM
Posted Feb 05, 2010 @ 12:24 AM
Last update Feb 05, 2010 @ 12:26 AM

MACHESNEY PARK — Denise Snelling works to spread a simple message about organ donation: It’s simple.

Snelling saved her sister Michelle Vronch’s life with a kidney donation July 8.

“I don’t think people realize that after this happens, you’re just the same,” Snelling said. “I do everything that I did before. If I had another one to give, I’d give it away, too.”

Both women are back to their normal lives. Vronch returned to work at the Harlem Community Center in mid-October.

“You could tell before that she was tired and needed the transplant,” said Shannon Scheffel, director of Harlem Community Center. “But ever since, she’s been full of energy and raring to go.”

The sisters promised to spread the word about organ donation.

Snelling, of Lexington, S.C., is outgoing by nature. She has turned to local politicians and those seeking office with her goals to bring a transplant program to South Carolina.

Public speaking never came as easily to Vronch, but she has decided to step out of her shell to spread the message.

She’ll share her story at a Rockford Network of Professional Women luncheon at 11:30 a.m. Feb. 15 at Forest Hills Country Club, 5135 Forest Hills Road, Rockford.

“This is so important to me that I just have to overcome that fear,” Vronch said. “If I can get just one person to sign the back of that driver’s license, then I’ve accomplished something.”

Doctors diagnosed Vronch with polycystic kidney disease in 1992. The disease progresses slowly and is characterized by the growth of cysts, which prevent healthy kidney function and often lead to kidney failure.

Polycystic kidney disease is the most common life-threatening genetic disease, according to the National Kidney Foundation.

The disease affects more than 600,000 Americans and an estimated 12.5 million people around the world.

Vronch said she also hopes to organize an annual program to benefit transplant recipients and their families who may struggle to pay medical costs.

She’ll first be the recipient of such an event. Family and friends have organized a benefit for her Sunday.

“I have to pay it forward. That means a lot,” Vronch said.

Staff writer Kevin Haas can be reached at khaas@rrstar.com or 815-987-1354.