Archive for July, 2009

A gift of life: Bloomfield native donating kidney to northern Indiana woman

Wednesday, July 22nd, 2009

Wednesday, July 22, 2009
By Nick Schneider, Assistant Editor

(Photo)
Jonathan Stewart

The gift of life is indeed something to be cherished and a 22-year-old Bloomfield native plans to take a bold step later this month and do his part to make sure a northern Indiana mother has a full life with her family.Jonathan Stewart, who’s known as “Stewy” by his friends and family, will donate his left kidney to a 30-year-old mother in a transplant operation planned for July 31 at Indiana University Medical Center in Indianapolis.

Stewart has never met the woman, but said there’s a real special reason he came to the decision to give up his healthy functioning kidney and be a donor.

He’s doing it to honor of his late uncle, Joseph Anthony Hajdinak, of rural Solsberry, who died Nov. 28, 2008 and also another “dear friend” from Bloomfield, who recently died.

Both men died from complications associated with diabetes.

Jon had intentions to originally donate one of his kidneys to his ill uncle. However, his uncle expectedly died of a heart attack before the transplant plans could be finalized.

“He (his uncle) was all excited and we were talking about it,” Jon recalled. “He was my absolute best friend of all times. I would have done anything for him.”

After his death, Jon removed his name from the donor list, but said he was left with a void and didn’t feel completely whole.

“I wanted to do something so much for somebody in order to give them a second chance,” he said. “This donation is for two very important people who I feel suffered through this horrible sickness, but were unable to prevail, but yet lived life to the fullest every day. As far as I’m concerned, the way I look at this thing (the transplant) everybody makes mistakes in their lives, people who work their tail off and some times they just don’t ever get the opportunity or what I would call a second chance. This is my way of remembering two very strong souls who did everything they could to live for their families, but unfortunately God had different plans for them,” he explained.

Jon continued, “I am doing this to give a very nice beautiful young woman that has a 2-year-old child and a husband a second chance at life so she doesn’t have to feel sick every day of her life and also she will soon have the energy to be able to do the things she wants with her daughter.

Stewart, a 2005 Bloomfield High School graduate and a current student at Indiana University in Bloomington, will have the opportunity to meet his kidney recipient — Kristine Marcoux — for the first time on Saturday when he travels to her home to introduce himself to her entire family.

The woman, according to Stewart, has been in kidney failure for the last two years — since her only daughter was born — and she has undergone regular dialysis treatments.

“I spoke with her husband last night to set up the event and meet up with her. It’s been very exciting. To me, in my mind, it’s not like I am just saving another person’s life. I am in a sense at the age of 22, I’m going to have a 30-year-old daughter,” he said with a laugh. “She is going to be able to see her world in a new light now instead of questioning how much longer does she have to live.”

Jon explained that the recipient suffers from a kidney disease that came after she had high blood pressure at a very early age. She was told by doctors that she probably couldn’t conceive a child. They later told her it was OK.

“She had the child and then both of her kidneys failed at that point,” Jon said.

The kidneys are paired organs, which have the production of urine as their primary function. They are part of the urinary system, but have several secondary functions concerned with homeostatic functions. These include the regulation of electrolytes, acid-base balance, and blood pressure.

Jon said it’s unique and a literal stroke of good luck how he was matched up with Kristine.

He works part-time at Best Buy store in Bloomington and was talking to his manager one day about possibly taking some time off in the future to undergo the kidney donation surgical procedures. In the course of the conversation, the manager mentioned his sister in law was in need of a transplant.

Jon then began checking into the possibility for being a match with her and everything has worked out.

“I had no one in particular that I was going to donate it (the kidney) to. I was just going to donate it to any random person. I asked him to tell me more and he told me about her little girl and all of what she’d been through. I told him that I was going to get tested and within two months later, she and I were a match and here we are,” Stewart explained.

Jon said he was deeply touched when he talked with Kristine’s husband on the telephone.

“He and I were literally in tears over the phone,” he said. “He said,’ Me and my wife, we owe you everything.’ I told him the only thing I ever ask or expect from anyone is to hear the remarkable stories of these two men and just enjoy life and live it to the fullest. He told me that I am now an official part of his family. My nickname from them now is ‘Uncle Stewy’.”

When asked what kind of thought and prayer went into his decision, Jon said, “I wanted to close the door with uncle’s death. I told my Mom there are two things that I have been given as my gift from God. One is that I can make about anybody laugh. Then, also I found out that when I was checking into this for my uncle that my blood type (O-negative) is universal. That means that I can match up almost anybody and everybody. That’s when I decided I have these things and I need to use these gifts.”

Stewart is the son of Dave and Anne Stewart of Bloomfield. During his school days he was an active performing member of the choral groups and drama productions.

Now, he’s studying tourism management and minoring in musical theatre. He’ll finish his degree in about three semesters.

For the last two summers, he’s been a part of the cast at Shawnee Summer Theatre in Bloomfield — appearing in Godspell in 2008 and The Wedding Singer this summer.

Jon said he recognizes that most people donate organs after they die, but he wanted to do it now.

“Everyone deserves a second chance … to enter a new life,” Stewart said.

Stewart called himself a spiritual person and said his decision to be a donor did not come lightly and not without a lot of prayer.

There are risks of infection and the possibility he might develop high blood pressure later in life in being a donor.

He’s undergone extensive blood work and testing prior to his procedure.

His final decision to be a donor came on May 17 during a visit to the grave yard where both his uncle and friend are buried.

While standing in front of his uncle’s grave, Jon asked himself, “should I do this?”

“I broke down in tears. It was like I had this persons standing behind me with his hands on my shoulders and to say yes,” Jon recalled. “I didn’t get the chance to save him, but I’m getting a chance now not only to save this woman, but I’m getting a chance to save her child from not having a mother. It was the most amazing feeling I’ve ever had in my life.”

Organ donation turns one ending into many beginnings

Wednesday, July 22nd, 2009
By Clare Howard
GateHouse News Service
Posted Jul 22, 2009 @ 03:02 PM
Last update Jul 22, 2009 @ 03:19 PM

PEORIA, Ill. —

Delora “Dee” Tilton was paralyzed with grief following the death of her son Jeffrey. Healing began when she received an unusual letter in the mail at her Groveland home.

The letter was from the Regional Organ Bank of Illinois and contained this information:

- A 54-year-old Illinois woman received Jeffrey’s liver. She had suffered from hepatitis C and had waited 10 days for a transplant. She is married with three children.

- A 51-year-old Illinois woman received Jeffrey’s pancreas. She had diabetes and had been waiting two years for a transplant. She’s married and works as a teacher.

- A 32-year-old Illinois man received Jeffrey’s left kidney. He had high blood pressure and had been waiting over four years for a transplant. He is single and works as a stock manager.

- A 68-year-old Illinois woman received Jeffrey’s right kidney. She had high blood pressure and had waited four years for a transplant.

- Jeffrey’s heart couldn’t be used for transplant, but heart valves were recovered. The valves were likely used for patients needing heart valve replacement surgery or children born with heart anomalies.

“I felt such relief when I got that letter. I knew part of Jeff was still living and helping someone else,” Tilton said. “I had been on the couch crying for two weeks, and all that changed when the letter arrived.”

Raising awareness

Now, Tilton is committed to raising awareness not only about the need for more registered organ donors but also about the help organ donation provides for surviving family members. She is lead volunteer with Donate Life Illinois. Her group staffs informational tables at various events to answer questions and dispel fear about becoming an organ and tissue donor.

“There are more than 100,000 people on the waiting list for an organ. It’s hard for me to understand why anyone would not want to register as a donor,” she said.

Tilton’s husband, Jim, had a kidney transplant 20 years ago before the two were married. Children from the couple’s previous marriages are registered as organ donors and their grandchildren volunteer at Donate Life events.

Becoming a donor is now easier than it was when Tilton’s son died in 2001. At that time, people registered to become an organ donor by signing a form on the back of their driver’s license and having two witnesses sign.

Even with that form, however, final approval was with the family. When her son died, his wife initially declined to allow his organs to be taken. Tilton’s other daughters were able to help her reconsider.

“Now she’s so glad she changed her mind. She just regrets that she wouldn’t allow them to take his eyes,” Tilton said. “It’s always good to talk with your family in advance so they know your wishes.”

Register in seconds

In 2006, the law in Illinois changed. People can register through the Web site www.DonateLifeIllinois.org, by visiting any Illinois state driver’s license facility or by calling the Illinois Secretary of State Organ/Tissue Donor Program at (800) 210-2106.

The new law creates a first-person consent registry that is a legally binding agreement and takes the burden off family members who are already overwhelmed following a death.

Tilton said more than 4.1 million people have joined the registry.

“When people over 18 are asked about joining the registry at the Secretary of State’s driver’s license facility, 47.6 percent say yes. But 52.4 percent say no,” Tilton said. “Our goal is to change that.”

Tilton’s group meets monthly in Morton and plans activities to raise awareness. The group participated in a campaign in April at Methodist Medical Center to encourage hospital employees to register. The registration table was staffed by either donor families or recipients.

Tilton and her husband represent both.

“Members of our group include four kidney recipients, two pancreas transplants, two double lung transplants, four heart recipients, a grandmother who lost her grandchild at 11 months. We all want to give something back,” Tilton said.

“You can’t find a better way to give back than by helping someone else. My granddaughter thinks her dad is a hero because he wanted to help others.”

Gift of Hope flag

Methodist and OSF Saint Francis Medical Center raise a special Gift of Hope flag outside the hospital for 24 hours following the death of a patient who is a registered organ donor. The flag is then lowered and given to the donor’s family.

The flag went up for the first time in two months on Monday morning at the entrance to the lobby at Methodist following the Sunday death of a 79-year-old woman. Normally, the flag flies about 15 times a year at Methodist.

Jennifer Hoppe, hospital development liaison with Gift of Hope, said there is no age limit for organ donors and there is always a shortage.

Jill Prosser, manager at Methodist Hospice, said even hospice patients who die from cancer may be able to donate corneas.

Jim Tilton said that when he needed a transplant 20 years ago, “I would have been tickled to get the kidney of a 95-year-old person. Let the doctors decide. Maybe you have a bad heart, but your eyes, bone marrow or skin could be used. Be a donor.”

Clare Howard can be reached at (309) 686-3250 or choward@pjstar.com.

Taxi driver gives customer a kidney

Wednesday, July 22nd, 2009

From: KSDK.COM

NBC — For a woman in Midland, Texas, years of chatting with her taxicab driver has turned into an amazing story of friendship.

And a life-saving sacrifice.

“Our relationship? Opposites attract I guess,” says cabbie Carol Hambright.

For Hambright, Keri Evans is more than just one of her clients.

“I have Type 1 diabetes. I have had it for 48 years. This is why my kidneys have failed. I’ve been on dialysis for 2 1/2 years,” Evans relates.

Because of her condition, Evans is in need of a kidney transplant. But she never thought her cab driver would be the one willing to donate a kidney in her time of need.

“Everybody’s like, I can’t believe you’re giving up your kidney. I said well, you only need one,” says driver Hambright.

Hambright has been taking Evans to her dialysis for the past 2 1/2 years..

Somewhere along the way, their chats became more like those of old friends.

And Hambright went from cab driver to lifesaver.

“She told me you don’t have to worry about picking me up tomorrow. She said I quit. I said excuse me. I’m not going to make it, I can’t get a kidney. That’s when I told her I’ll give you mine,” the cab driver relates.

Hambright’s offer caught Evans by surprise.

Evans says most people dread and fear surgery. But her attitude is just the opposite.

She welcomes going under the knife.

“Dialysis is really hard.”

“People should donate if they can. It’s not that hard to do,” Hambright advises.

The pair Will go through some more tests this week to make sure they’re a match.

NBC

Hopkins exec blogs kidney donation

Tuesday, July 21st, 2009

Ten days ago, Johns Hopkins Hospital exec Pamela Paulk had two kidneys. Today, she has one — and a co-worker she barely knew three years ago also has one, thanks to Paulk’s decision to donate one of hers. Just because she could.

She has been blogging the entire experience. She is even tweeting it.

Her story begins about 10 years ago after she observed a transplant surgery and started thinking about becoming a kidney donor herself. About five years ago, she decided she was ready to give, but she wanted her kidney to go to someone she was connected to in some way. Then, a few years later, she ran into Robert Imes. A painter and mechanic at the hospital who Paulk knew well enough to say “Hello” to, Imes had been out sick for 10 months with kidney disease.

“I said, ‘Robert, I really missed you. Is there anything I can do for you?’ He said, ‘I need a kidney.’ And I said, ‘You can have mine,’” Paulk recalled. …

As odd as it sounds, she meant those words. Today, both she and Imes are recovering from their surgeries and doing well.

“I felt like my life wouldn’t be complete until I did this,” she said. And giving is the great joy she knew it would be (even if her belly does hurt a little).

At first, Paulk was reluctant to write about her medical journey. The 55-year-old Canton resident remembered what her mother used to say: If you give a gift and then brag about it, it isn’t much of a gift. But she knew she might be able to turn her tale into a bigger gift, by drawing attention to the need for kidney donors.

Maybe someone else would even decide to follow her lead.

Things are already starting to happen. Her brother went to the MVA just the other day. He made himself an organ donor.

“The wheel has begun to spin,” she said.


http://weblogs.baltimoresun.com/health/2009/06/post_3.html

Siblings go through kidney transplant

Tuesday, July 21st, 2009

Updated: Saturday, 27 Jun 2009, 9:02 PM EDT
Published : Saturday, 27 Jun 2009, 7:32 PM EDT

* Alyssa Ivanson

FORT WAYNE, Ind. (WANE) – Brent Doctor was an active person. He grew up helping his father on the farm and was a professional kickboxer. Sitting for several hours each day is not his idea of a good time, but that’s what he has to do for his dialysis treatments.

“It’s now a part of my life. I do four dialysis treatments a day and each takes 30 to 40 minutes,” Doctor said.

When he was 12 years old, Doctor was diagnosed with Type 1 diabetes. Diabetes is a leading cause of kidney failure, or end-stage renal disease.

“Diabetics on dialysis have a three year survival rate of only 35 percent, so they need a transplant and they need it now,” Lutheran Hospital Kidney Transplant Program Director and Surgeon Dr. Tarik Kizilisik said.

Doctor, 30, went into the hospital in November 2008 with kidney failure. He started dialysis at home in December. But, he didn’t have to wait for a kidney long.

“I have an extra one for a reason and thankfully I get to help him out,” Doctor’s half sister Jenny McConnell said.

Doctor was adopted as a baby. When he was 18, he put his information up on an adoption Web site. Four years ago, Doctor’s birth mom found him.

“We’re still getting to know each other, but it seems like we were never apart. He fits in so well with us and has so many similarities to our mother, it’s like I’ve known him my whole life,” McConnell said.

Last April, their mother, who also has diabetes, needed a kidney transplant. McConnell, 26, wasn’t a match.

“When I couldn’t help her, I wanted to help him, no questions. I never hesitated. I knew it was going to come, but I didn’t know it would be so early,” McConnell said.

Just a few months later Doctor went into kidney failure. This time, McConnell was a match.

“We were very excited and it’s creating a stronger bond,” Doctor said.

After the transplant, Doctor’s looking forward to spending more time being active with his daughter, 8-year-old Cara, and going back to school to be a nurse to work with other diabetics.

McConnell’s also a mom. Her son, 4-year-old Bryce, said he’s going to help her get well after the surgery.

“He gave me a big hug and kiss and told me good luck and that he was in my heart no matter what,” McConnell said.

McConnell hopes the surgery will motivate her to be healthy.

“It’s going to make me live a healthier lifestyle so down the road I won’t become a diabetic,” McConnell said.

The Transplant Surgery

Doctor and McConnell’s transplant was scheduled for Wednesday morning at the Lutheran Hospital Kidney Transplant Center. It started two years ago, and outside of Indianapolis, is the only other place for kidney transplants in Indiana, said Dr. Kizilisik.

Doctor’s transplant was the center’s 52nd.

“I would like to have more. I wish we had 150. We have a great team here. We’re ready. We could do two or three transplants a day, just show me the organs,” Dr. Kizilisik said.

At Lutheran, there are 69 patients on the waiting list for a kidney and another 88 are getting evaluated.

“Since opening this program, patients aren’t traveling and spending a lot of time and money. Now they can come to us,” Dr. Kizilisik said.

He added Lutheran is doing the follow-up care for about 500 patients who already had transplants. Kizilisik said Lutheran is also one of the few transplant centers in the country to use robotic surgery for the donor patient.

Technology over the years has changed the donor surgery. The donor used to have a painful incision that cut the muscle under the rib cage.

Now at Lutheran, Dr. Erik Weise uses the da Vinci robot to take the kidney out.

“Removing a kidney from a living patient is a procedure where nothing can go wrong. It’s one of the highest stakes surgeries we do,” Weise, the Director of Robotic Surgery at Lutheran said.

Weise can also do the surgery laparoscopically. Either way, the incisions are much smaller and heal much faster. There are three incisions in the abdomen about the size of a pinky finger and then another cut either above the belly button or in the groin to remove the kidney.

“The kidney is attached by blood vessels and the urine tube, which takes urine to the bladder. I free up the kidney inside through the three small little holes, and cut the urine channel and make sure the kidney is making good urine,” Weise said. “Then I make a small incision, remove the blood flow and remove the kidney immediately, so it’s deprived of blood for a very short time.”

Dr. Weise used a stapler with tiny staples to cut off the vein and artery connected to the kidney. The kidney is put in a bag and then pulled out of the donor’s body.

While Dr. Weise was working on freeing up McConnell’s kidney, Dr. Kizilisik was in the operating room next door preparing Doctor to receive the new kidney.

“I open and prepare where we will put the kidney in while the donor surgery is happening,” Dr. Kizilisik said.

Dr. Kizilisik came into the donor surgery and was standing buy with a bucket of ice. As soon as the kidney came out of McConnell, Dr. Weise put it

in the bucket.

Dr. Kizilisik started working on the kidney to make sure it was a good organ. He also started flushing it to get all of McConnell’s blood out of it and cooled it down in ice. After working on it for a few minutes, he carried it through a short hallway into the operating room where Doctor was ready for the transplant.

Once the kidney was out, Dr. Weise’s surgical team started the process of closing McConnell up to finish her surgery. Her surgery lasted about two hours.

Once he was in the second operating room, Dr. Kizilisik continued to work on the kidney, making sure all the blood was flushed out. He also marked the veins and arteries to make it easier to connect them in Doctor’s body.

After connecting the blood flow of McConnell’s kidney in Doctor’s body, Dr. Kizilisik used a doppler machine to make sure blood was beating through it.

Dr. Kizilisik also checked to make sure the kidney was making urine by squeezing the ureter, which connects to the bladder. When urine spayed out, he knew the kidney was working.

“The kidney is put in the groin area, not where the native kidneys are. Because we have to hook the kidney artery and vein to the vessels and hood the ureter to the bladder, for that the most suitable area is the groin,” Dr. Kizilisik said.

After the ureter was connected to the bladder, the surgical team checked the urine meter bag to make sure Doctor’s new kidney was functioning.

Two days after surgery, both McConnell and Doctor were doing well. McConnell was scheduled to go home from the hospital on Friday and Doctor should be able to go home on Monday.

Now that the surgery is over, Doctor will go to Lutheran for checkups two times a week for the first month.

“We follow them very closely and act proactively if there are any problems,” Dr. Kizilisik said.

That close follow-up care is one reason Kizilisik said Lutheran’s kidney rejection rate is 6 percent when the usual rejection rate of a kidney transplant is around 15 to 20 percent.

Doctor will also take immunosuppressant medications to help prevent his body from rejecting the kidney for the life of his transplanted kidney.

Kidneys from a living donor can last about 15 to 20 years, while a kidney transplanted from a cadaver, or person who died, lasts about 10 to 12 years.

Organ Donation and Transplant Wait Lists

Dr. Kizilisik said about 100,000 people in the United States are waiting to get a transplanted kidney. Only about 15,000 to 16,000 kidneys come from cadavers a year, and that leaves a large gap of people who still need a kidney.

That gap is widening and wait times are getting longer. The average wait time in Indiana for kidney is three years. Two years ago the wait time was about 18 months, Dr. Kizilisik said.

He said people living longer and better diagnosis of kidney failure are contributing to the longer wait times.

“People die waiting for a kidney. We need more organs,” Dr. Kizilisik.

Almost half of the transplants at Lutheran so far have been from living donors. Usually the donor knows the recipient, but two people have volunteered to donate their kidney without having a recipient in mind.

“We’re particularly touched with patients who come in unattached. It’s wonderful to be a part of when a healthy person gives someone with medical needs the gift of life,” Dr. Weise said.

Dr. Kizilisik said people can survive on dialysis for several years, but it’s not meant as a long term treatment. It’s designed to keep the people waiting for a transplant alive long enough to get a new organ.

“If there’s ever the opportunity to do something really great for someone else, even if it’s just a test, even if you aren’t a match, I wouldn’t hesitate to do it,” McConnell said.
McConnell isn’t worried about having one kidney.

“Actually 60 percent of one kidney is enough. So why did God give us two kidneys? God gave us two kidneys so we can donate one of them,” Dr. Kizilisik said.

If someone donates a kidney and has kidney problems later in life, Dr. Weise said that person is moved to the top of the waiting list.

“It’s very rare for a patient who donates a kidney to get into trouble. Someone who is a candidate for kidney donation is screened to have two perfect kidneys,” Dr. Weise said.

For more information, contact Lutheran Hospital Kidney Transplant Center at (260) 435-6275.

http://www.wane.com/dpp/mobile/local_wane_ftwayne_half_siblings_go_through_kidney_transplant_200906271701

Local graduate Nicole (Swanson) Lanstrum donates very special gift

Tuesday, July 21st, 2009

July 02, 2009 – While being an organ donor is not in itself unusual, the circumstances with 1996 CGHS graduate Nicole (Swanson) Lanstrum were a bit different. She donated a kidney to a complete stranger, but it also triggered a chain of donations at other centers which will restore the lives of many other people because of her generosity.

Lanstrum has never known anyone on dialysis, but is hoping her donation will inspire others in the military to donate. She had wanted to do something to help someone else with no strings attached. “I just feel we’re all put on this earth to make it better and no one has the same game plan. I knew this was something that God supports me in,” said Lanstrum, who is an Air Force tech sergeant specializing in intelligence analysis and the study of military capability and tactics of foreign countries and terrorist organizations. She is stationed in Tucson, Arizona with her husband George who is also in the Air Force. She has two stepchildren, George and Kayleigh.

Lanstrum had thought about doing this since high school, when she found out that you only need one kidney to live, and had even sought out information from the National Kidney Registry for this purpose. “I first pursued this dream in 2001, but was denied because they would only accept from live donors of close friends or relatives of the recipient and not total strangers,” said Lanstrum. Since then, advances in medicine have allowed the procedure to be done laproscopically. It’s less invasive and far safer to the donor than the traditional method. More importantly for Lanstrum, it allowed anyone to donate to anyone else in need.

She registered, and then under went a couple months of extensive tests to make sure she was healthy enough to donate. The computer soon matched her with a women named Valinda from Los Angeles. “I only knew that she was a 54 year old nurse who had been on dialysis eight hours a day, every single day, for over five years,” said Lanstrum. “If God had not intervened in our lives the way he did, she would still be waiting for a deceased donor’s kidney. It’s likely she would have waited in excess of a few more years.”

The transplant was done June 9th at the Ronald Reagan UCLA Medical Center, and her gift actually set off a chain that freed four other patients at UCLA from lives on dialysis.

According to Enrique Rivero, who is a Senior Media Relations Officer with UCLA Health Sciences, A donor chain creates opportunities for endless donor-recipient pairings. It starts out with, as in Nicole’s case, an altruistic donor– someone who wants to donate simply out of the goodness of their heart. That kidney gets transplanted into a recipient who had a donor willing to give but it was not a match. To keep the chain going, the incompatible donor is matched to another who they don’t even know. A specialized computer program is utilized to match donors and recipients from across the country.

Because kidneys can remain outside the body for 24 to 48 hours before transplant, these chains enable donors to give to complete strangers. Nearly 80,000 people are currently on the kidney transplant waiting list in the United States. UCLA has now performed three of these chains, having done the very first one back in July of 2008. Overall, transplant chains are considered rare.

“With a living donor the rates of success are three times greater,” said Lanstrum. “It couldn’t have been a more perfect match. It’s still early, but Valinda’s new kidney has shown absolutely no signs of rejection. In fact, it’s working even better than the doctors expected.”

Lanstrum remembers well her feelings both before and after the surgery. “I was anxious to meet Valinda,” said Lanstrum. “I learned that we were right next to each other in the pre-operation room, with only a curtain separating us. I asked a nurse to tell her that I can’t wait to meet her and am praying that the surgery goes well. The nurse smiled and said that she wanted her to tell me the same. I was both anxious and excited, but not nervous or the least bit apprehensive. When God’s behind you, he takes away the worry or fears. That’s just what he did for me.”

Lanstrum said that the best way to describe her feelings is something like when you know you’ve found the most perfect Christmas gift for someone and can’t wait for them to open it. “It’s like that times 1,000,” said Lanstrum. “I couldn’t wait to wake up from the surgery and find out how my recipient was doing.” She admits that even though her husband was a nervous wreck during the procedure, he was always supportive of her decision. “I never would have been able to do it without that,” said Lanstrum. “I am very blessed to have such a wonderful husband.”

Lanstrum said that her surgery took almost four hours, along with the same amount of time to do the transplant. “I was told that Valinda’s new kidney started working immediately after they removed the clamps,” said Lanstrum. “It was one of the happiest moments of my life. That is, until I got to meet her the next day. There wasn’t a dry eye in the room then.”

Yet another special moment for Lanstrum occurred the afternoon following surgery, when Valinda’s 22-year-old son came to visit. “He wanted to thank me for the gift I gave his mother, and with tears welling in his eyes told me that he was not able to be a match for her,” said Lanstrum. “He told me that it was hard to believe that I was actually a real person because the whole family kept calling me an angel. I found it difficult to receive such a compliment, but am honored to be so instantaneously loved. I never thought I would gain an entire new family out of the experience.”

As to the chain, Lanstrum explained that Valinda’s original donor was to be her best friend Sarah. She was a weak match for Valinda, so Sarah agreed to donate her kidney to a stranger in San Francisco. That person is doing well, with her sister now scheduled to donate her kidney to another stranger next month.

The chain has been named the ‘Service Before Self Transplant Chain’ in honor of Nicole and also one of the Air Force’s core values. It is already predicted to be over ten transplants deep, with still no end in sight. It potentially could go on forever.

Lanstrum is almost back to all her normal activities now and is set to return to work July 13th. “With one kidney I will live a completely full and normal life, because you truly need only one,” said Lanstrum. “This will affect me in no way other than the obvious. I don’t have a spare anymore.”

At a June 15th press conference held at UCLA, Lanstrum was given the ‘Everyday Hero’ award from UCLA and the City of Los Angeles. She admits that while it was quite an honor, her real reward is in knowing what a difference she made in one family’s life forever.

“I merely wanted to do something nice for someone else,” said Lanstrum. “I can say that this has been the most fulfilling experience of my life, and can honestly say that I am just as blessed as Valinda. The sacrifice is so minute in comparison to the gift you can give someone else. When you share love with others, there’s no greater feeling on this earth.”

E-mail us at cmonitor@mchsi.com

http://www.clarionnewsonline.com/Articles-i-2009-07-02-236153.112112_CGHS_graduate_Nicole_Swanson_Lanstrum_donates_very_special_gift.html

Donate a kidney

Tuesday, July 21st, 2009


The Bakersfield Californian | Sunday, Jul 19 2009 07:51 PM

Last Updated Sunday, Jul 19 2009 07:51 PM

It was particularly interesting to read the recent article about kidney transplants and the need for live kidney donors. I am at home recovering, less than two weeks after donating a kidney to a 17-year-old family friend at UCLA. It was a wonderful experience, the most profound in my almost 52 years of life.

I am certainly not a hero. I feel privileged to be able to take part in an experience that is truly life changing. Danielle has already regained her health and will no longer spend 15 hours a week at dialysis and feel lousy in between treatments. I look forward to watching her graduate from high school, college and medical school. This remarkable young lady plans to become a nephrologist and help other young people who suffer kidney failure.

If you have an opportunity to donate a kidney, please consider it. The success rate for live- donor kidney transplants is much greater than with cadaver donors and the risk to the donor is minimal. (UCLA has never lost a donor.)

My tummy hurts a bit, but I’m sure no more than if I had a C-section. I’ll be back to work this month and Danielle will be back to school in the fall. I’ve been blessed with a third daughter and Danielle will have the healthy and joyful life she was meant to have.

CAROLYN BEHM SHERMAN

Bakersfield

http://www.bakersfield.com/opinion/letters/x1216783530/Donate-a-kidney

Co-workers share stronger bond after kidney donation

Tuesday, July 21st, 2009


By Shelia M. Poole

Longtime co-workers Ceri McCarron and Betty Egwenike have shared stories about raising children, caring for ailing parents and their travels.

Now, they share an even stronger bond. McCarron recently donated a kidney to Egwenike, who was diagnosed with kidney disease several years ago and was on dialysis three days a week.

What makes their story even more compelling is that although the women worked together for more than 20 years and considered themselves workplace friends, they remained relative strangers outside the job.

“I think the conversations we’ve had in the last couple of weeks have been on a much deeper level,” said McCarron, 44, who lives in East Atlanta with her husband, two children and a menagerie of pets. “I never even had her phone number until I got it at the hospital.”

McCarron and Egwenike, 52, are now both home recuperating. The two, who work in the archives department of the Jimmy Carter Presidential Library & Museum, were part of a living donation, which takes place when a living person donates an organ, or part of one. Usually, the donor is an immediate family member, such as a sibling, a child or a parent. But sometimes the donor can be a friend, co-worker or a more distant relative, according to the American Kidney Foundation.

In 2008, 5,967 of the 16,517 kidney transplants came from living donors.

More than 102,000 people in the U.S. are waiting for an organ transplant, according to the Virginia-based United Network for Organ Sharing. About three-fourths of people on the list are waiting for a kidney transplant.

Egwenike said several members of her family have high blood pressure or heart disease, so more than likely, she thought her donor would be a total stranger. Dr. Miguel Tan, who performed the surgery on McCarron at Piedmont Hospital, said the wait times are generally shorter for organs for living donors. There’s also less trauma to the organ, the outcomes are better and evaluations are done on living patients, so their health profiles are well-known.

But one day the two were talking about the transplant and hit on the subject of blood type. It turned out both shared the same blood type — O negative — and a seed was planted.

“She initiated it,” Egwenike said. The disease produces cysts in the kidneys and eventually causes the organs to deteriorate and stop functioning. By the time she was diagnosed, Egwenike said 55 percent of her kidney function was gone. “I was surprised she was actually going to do it. I was skeptical because you can change your mind at any time. I kind of stayed in the background because I didn’t want to be harassing her. I didn’t ask, it was out of her heart.”

It also surprised James A. Yancey Jr., an archivist at the Carter Library, who supervises both women.

“I am awed by this whole process,” he said. “I’m surprised anyone would do this. They’re not kin. They were friendly because they worked together, but they didn’t party together. I don’t think there was an association after work. She (McCarron) put into practice what a lot of people talk about and that’s love.”

As far as McCarron is concerned, it was the right thing to do. “I just knew … I’d seen her struggle with her health for a while and she always did it with such dignity,” she said. “I could tell she was doing what she needed to do to take care of herself, work, raise a daughter and a marriage.”

McCarron spent hours researching the process and went through several tests to determine if she was a match and if her kidneys were healthy. At first her husband, worried about the longtime implications on her health, wasn’t too keen on the idea, but he later came around.

“We both agreed that if something were to happen to Miss Betty, how could we live with ourselves knowing we have helped,” McCarron said.

Egwenike is thankful for the gift. She said she feels much better and has no doubt McCarron took good care of her kidneys.

“Yeah,” she said, laughing. “She drank a lot of water.”

Egwenike said her husband’s friends would like to have a mass in McCarron’s honor. “It was just a beautiful gift,” she said. “She’s an angel.”

“I don’t think it will be the way it was pre-surgery,” McCarron said of her friendship with Egwenike. “Where it leads, I don’t know. I’ll just let it unfold.”


Member, Board of Directors of OPTN/UNOS (General Public Representative – Living Donor, 2008-2011) and Executive Committee, 2009-2010
Invited Attendee to the OPTN/UNOS Kidney Transplantation Committee while on the board
Member of the Editorial Board of the UNOS Foundation’s http://www.transplantliving.org/, 2005 to present, and the NKF Transplant Chronicles, 2009.
Living kidney donor, 2003
291 whole blood and platelet pheresis donations & counting, 1976-present,

Please consider yourself asked! Sign up to donate blood today at http://redcross.org/donate/give/ or call 1-800-GIVE-LIFE (1-800-448-3543). Thanks!

Helping A Neighbor In Need

Tuesday, July 21st, 2009

Bemus Point Woman Receives Kidney From Neighbor

By Scott Kindberg – skindberg@post-journal.com
POSTED: July 19, 2009

Email: “Helping A Neighbor In Need”

The letter was dated Jan. 14, 2001.

The sender was Franklin Laundry, a dear friend and retired pastor, who, until the day he died, always offered words of wisdom and counsel whenever I would see him.

But when I recently found the missive tucked into the top drawer of my oak desk – neatly typed and signed “Uncle Franklin” – I have to admit I was floored by how he ended it.

“When cheerfulness is kept up against all odds,” Franklin wrote, “it is the greatest form of courage.”

When the goose bumps on my arms finally disappeared, I couldn’t help but think how appropriate that quote – taken from one of my late friend’s daily devotionals – was for the story that follows below.

Heck, it could very well be the mantra of two Chautauqua County women, who, until six months ago, hardly knew each other, but today have a bond that will never be broken.

Sue Vincent of Jamestown gave Laurie Beaton of Bemus Point a new lease on life. In the process, they showed their family and friends the power of positive thinking.

When cheerfulness is kept up against all odds, it is the greatest form of courage.

Somewhere, Franklin is smiling.

Riley Beaton, the youngest of Laurie and Kevin Beaton’s four children, sat in Sue Vincent’s seventh-grade health class at Maple Grove Junior-Senior High School late last year. The topic was the body’s internal organs.

At one point during the discussion about kidneys, Riley, not normally the talkative sort, raised his hand.

“Riley?” Sue asked, somewhat surprised.

“My mother needs a kidney transplant,” the youngster said matter of factly.

Stunned, Sue later ran into Kevin at Bemus Point Elementary School where they both teach physical education and he confirmed his son’s revelation.

What Kevin couldn’t have known then was that the person who would ultimately save his wife’s life was the person looking at him.

Sue and Laurie were about to embark on an amazing odyssey. They just didn’t know it yet.

Laurie is 47 and teaches elementary physical education in the Pine Valley Central School District. After developing kidney issues as far back as 20 years ago, she learned in the early 1990s that she had a condition known as Alport Syndrome, a highly degenerative kidney disease.

“It was a real gradual process,” Laurie said. “If I didn’t know I had the disease, I wouldn’t have known it. I felt just normal and fine.”

But about three years ago, her kidney function began to drop considerably and in the last two years she developed other conditions, including water retention, and elevated blood pressure and cholesterol. By last fall – after a complete head-to-toe physical – Laurie was urged to begin compiling a list of prospective kidney donors.

A transplant was no longer in the distant future.

“It got to the point where the doctor said we have to start this process,” Laurie said as she sat with Kevin on a couch at their Bemus Point home. “We had talked about it, but it was down the road. But I knew once my function dropped to 15 percent that’s when you get the ball rolling. I knew it, but I really didn’t want to face it until he said, ‘Where do you want your transplant done?’ ”

The University of Pittsburgh Medical Center was selected as the site almost immediately.

Finding a donor?

Not so fast.

“The hard part was just being patient,” Kevin said.

Sue, 52, is married to Jim, they live in Jamestown and they have three children – Dan (25), Kevin (22) and Amy (20). And although Sue teaches in the Bemus Point Central School District with Kevin Beaton they were more colleagues than personal friends.

But when he mentioned last December that he was looking for an organ donor for Laurie, Sue began thinking about being tested to see if she would be a match.

“I thought about that fact that if I needed a kidney I would hope people would come forward for me,” Sue said. “It’s a life.”

Keeping her thoughts initially to herself, Sue researched kidney transplants on the Internet, and drew on her experience as a health teacher and also on her awareness of the surgery gleaned from when a family member had donated a kidney a few years before.

Finally, knowing her blood type was O-positive, like Laurie’s, Sue, with Jim’s blessing, donated her blood and then had to wait several weeks to see if she could ultimately be an organ donor.

Time was of the essence because the first three potential donors – a brother, a sister-in-law and a friend – were not a match and Laurie’s condition was getting worse.

“Thank goodness, in the second round (of testing), Sue was a match,” Laurie said. “I’ll never forget it.”

A woman who Laurie only really knew from afar was going to be the one to save her life.

“Never once did she show me she had a second thought,” Jim said. “She wanted to say that she did everything she could. … She really has a lot of guts.”

And a loving heart.

When an announcement was made over the public address system at PVCS that “Mrs. Beaton” had a match, students could be heard cheering.

Sue found out she was a match in March, but that was just the first hurdle.

“I had the million dollar physical,” she said. “I had every inch of me scanned, and there were X-rays, blood work and stress tests.”

“That started the whole process of ups and downs and whether she was going to qualify or not,” Laurie said.

Finally, in April, the families received confirmation that Sue would indeed be the donor. The tentative surgery was set for May 18 at the University of Pittsburgh Medical Center. But that date was moved back to June 10 when Laurie experienced complications related to her potassium level.

“I was feeling pretty good,” Laurie said. “I was tired, but nothing else was really up. Then we got a date of June 10 and all hell broke loose between May 18 and June 10.”

How bad was it?

Laurie’s kidney function was down to 3 percent; her hemogloblin levels were dropping and she began experiencing breathing problems. They were so bad, in fact, that she’d sleep for about an hour only to wake up “kind of panicky because I couldn’t breathe.”

Ultimately, she was admitted to Hamot Medical Center in Erie to begin a series of dialysis treatments in the days leading up to her transplant date. After a final treatment on Monday, June 8, Laurie and Kevin left for Pittsburgh and an appointment at 10 a.m., June 9 at UPMC.

Doctors performed many tests and finally cleared Laurie for surgery at 1:30 p.m. the next day.

“We were anxious about the reality of it all,” said Wendy Johnson, Laurie’s sister. “She was so anxious to feel good. She’s very optimistic and she’s very practical. She needed a new kidney and she wanted it. Period.”

Sue was more than happy to oblige.

“I was really excited to have a date to do it,” she said. “I wasn’t nervous at all. I was anxious to get this done and get her back on her feet.”

Laurie had no doubt about the outcome.

“First of all, that’s my nature,” she said. “I think that I tend to see the positive as opposed to the negative.”

The surgery lasted four hours and went flawlessly. The results were immediate.

“The minute they hook the kidney up to the blood supply it starts working,” Laurie said. “I guess in the first hour if you have a live donor kidney they hope it will put out 30 ccs of urine. Mine put out 1,100. It just started working like crazy from the get-go.

“I feel as if it wasn’t me that it happened to, but that it was a story about somebody else.”

In reality, though, it was a story about two people, who were virtual strangers at the start, but like sisters at the end.

Fittingly, a day after surgery, Laurie’s sister, Wendy, grabbed her cell phone and took a photo of the women, who bear a remarkable resemblance to each other, and titled it “Angels.”

“I was just amazed at the two of them before, during and after,” Wendy said. “They were constantly going back and forth visiting each other. … They were both glowing. No one should look that good after surgery, and I just thought this is a Kodak moment.”

Wendy has one more moment to share, one she put to paper in the form of poem as a tribute to what Sue did for Laurie her family.

“I didn’t even think there were words how I felt, but then they came,” Wendy said. “I haven’t given it to her yet. We felt if she read it in the newspaper, it would be more of a surprise.”

So, here it goes, Sue. Enjoy Wendy’s Sunday surprise, entitled “By Design.”

More than a hero, you stepped up to the plate,

Opened your door to God’s will and to my sister’s fate.

You, the quiet leader, setting the pace

Chose to break your stride to help the human race.

I wish there were more like you, thinking unselfishly, so kindly

Imagine a world like that with no souls walking blindly

No more “I don’t care,” no more unfeeling rude

You give light to greater thought and depth to attitude

You cause me to wonder; I’m overwhelmed with your grace

You cause me to look up and see a brighter place

I’m at a loss for words when it comes to you

How can I express what words alone can’t do?

On a much smaller scale, in our little corner of the world

Darkness prevailed ’til you brought back our little girl

You, one single person, one fine lady, by design

Turned our world right side up when you brought back our sunshine

More than five weeks after receiving her new kidney, Laurie said she’s undecided about when she’ll return to work at Pine Valley Central School.

”One doctor said I could go back in September, one doctor said I could go back in four months, which would be October, and one said I could go back in six months, which would be December,” she said. ”The smart thing would be to wait until December, but I don’t know. I miss not being there. I’m making the best of being off, but I really like doing what I do.”

As for Sue, she’s also doing well. Two weeks post-op, she was walking two miles a night and not looking at all like someone who had just donated a kidney.

”Everybody has come up to me and given me a hug, telling me what a wonderful thing I’ve done,” she said. ” … It’s an awesome feeling what you can do for somebody.”